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People with dementia at the heart of research
Paperback
€33.34
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- Book Synopsis
- People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. It's time for that to change. Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research. This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. A key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition.
- About The Author
- Rachael Litherland co-founded Innovations in Dementia with Nada Savitch in 2007. She has a background in psychology and advocacy and is particularly interested in ways of working that enhance people's day to day lives. She especially enjoys working with people with dementia in care homes, having begun her working life managing an advocacy project for care home residents with dementia in London. Rachael has focused for the past few years on involvement methods and has seen a lot of change from the early 2000s when she set up an involvement programme for the Alzheimer's Society.
- Product Details
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- ISBN
- 9781787757028
- Format
- Paperback
- Publisher
- Jessica Kingsley Publishers, (18 April 2024)
- Number of Pages
- 174
- Weight
- 260 grams
- Language
- English
- Dimensions
- 228 x 152 x 16 mm
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